I had the pleasure of meeting Gracie Kay and her mum when I went home to Florida in April. Gracie had just been diagnosed with Rett syndrome which my little Gracie May also has. So I got to have a great talk with her mum who naturally had loads of questions. It was pretty surreal sitting in a coffee shop in the hometown where I lived my entire life with a little girl who had the same condition (and the same name) as my little girl who was, at that moment, three thousand miles away.
Naturally, I had my camera with me and got to photograph Gracie for the Cure Rett awareness campaign which I’ve been working on since October. Click here to see her final infographic which just went live on the Cure Rett Facebook page yesterday.
I got these shots in about three minutes which is all Gracie would give me. She’s pretty fast on her feet.