As a rare disease mom, I’m always honored to have the opportunity to support rare disease associations and foundations. I offer discounted rates to non-profits in this space.

Elijah and I did video and photography for the Koolen-de Vries Syndrome (KdVS) Foundation’s annual patient advocacy summit when it came to Orlando in 2024.

We did event photography on day 1 and returned on day 2 with our studio kit to be on hand for families and KdVS clinicians who wanted portraits taken and those can be seen here.